In the PALGA systems, safeguarding the privacy of patients, specialists and laboratories is a pivotal consideration.
- The use of data is subject to comprehensive regulations.
- All identifying personal data from studies are pseudonymized and not traceable to individuals.
Details of the privacy regulations can be viewed at PALGA.
Pathology test: How will your data be handled?
Copies of PALGA’s Patient leaflet are available at laboratories. This leaflet gives details of how to inform patients about pathology tests and the use of data. It can also be downloaded in Dutch, Turkish and Arabic.
The storage of human tissue by pathology laboratories ../assets/uploads/Patienten/PALGA_pathologie2014Engels_juni2014.pdf
The Dutch Pathological Society’s (NVVP) Patient Leaflet (in Dutch) can be used as patient information on the storage of human tissue.
Research involving your residual human tissue. No objection?
The Dutch Pathological Society’s (NVVP) Patient Leaflet (in Dutch) can be used as patient information on the use of human tissue.
The above leaflets were drafted with the assistance of various patient organizations: the Dutch Patients Consumers' Federation (NPCF), the Association of Cooperating Parent and Patient organizations (VSOP) and the Dutch Federation of Oncological Patient Organizations (NFK).